Since Sunday we have had the yucks at our house!! First 3am Brookie, 4am Bo both throwing up until 9 am!! Brookie was doing great by Monday morning just a 24 hr thing! Then Leksi got it, 24 hr and fine!! Johnny didn’t get it!!
(knock on wood) Bo couldn’t get past it, since Sunday he has had over 100 dirty diapers and I am not kidding!!! It was terrible, this is just how it works a minor 24hr bug turns into a week of poor Bo being miserable! So we had no choice but to go to the dr today, which turns into us spending the night at KU… I was terrified when they went to access his new port!! But the most amazing Cathy did an amazing job and made me feel 100 times better!! After everything we went through 3 weeks ago I am glad it’s working and doing what it’s supposed too!!! I hope this Isn’t the beginning of a very long fall and winter!!
C
August 12, 2012 - 10:02 pm
As Bo’s Grandmother, Thank all of you that turned out and the support you have given John and Carolyn. And my husband John(Jay) patient’s of a saint.
Where do I begin? For the past several weeks we have been working on this bone marrow drive. I couldn’t sleep last night, I was worried no one would come and all of my amazing family and friends who had given up their whole day was going to be a waste!!! WELL I was wrong, it was more then I ever dreamed of, it was amazing. I had the hardest time a while back airing our “dirty laundry” is what I call it, it is really hard to hear myself,when I read the things I write down, BONE MARROW transplant is the word I hate, I hate that it controls us, I hate that Team Kris can’t find a match, I hate that my 2 year old and his Brother and sisters know at the age of 9~11 what a bone marrow transplant is,I HATE THAT my sweet baby boy is sick,I HATE ALL of it. BUT a day like today makes things seem just a little easier, knowing there were that many people coming out and willing to donate for us, for BO…. It is an overwhelming feeling in the best way ever. The day started like usual we were up and around early, we headed to the school at 8:15 to start setting up, I didn’t even have time to think. Then Boom 8:45 people were there ready to get swabbed, It was awesome. We had a total of 162 people added to the list today, a few people couldn’t because of some health issues. That is so wonderful..I talked to so many people I have not seen in so many years, but they were willing to give up their time and come to help, maybe” BE THE MATCH”! It is the hardest feeling in the world to describe other then grateful. I am so thankful. The amazing ladies from Be the match, all of the people who donated their time and fun activities to do today all of the wonderful people who volunteered, Thank you!!! John and I appreciate each and everyone of you, and all that you do for us and our family!!
One Last thing, PLEASE pray for Team Kris she started a very heavy treatment plan this week for the next 6 weeks and she will be fighting like crazy to keep her head above water, PLEASE PRAY for her and her family!!
Lots Of Love..
C
August 12, 2012 - 7:32 am
Praying for that match, Carolyn…for Bo…for Team Kris…prayer works!
I am so incredibly excited for tomorrow. It is our fervent hope and desire that the Bone Marrow Donor Drive in honor of Bo has a huge turn-out.
Just to remind you it will be at Roesland Elementary, 4900 Parish Drive in Roeland Park, KS, from 9 am to 2 pm in the gym.
To keep the kids entertained a moonwalk is being provided by Creative Carnivals (thank you to Connie and Sondra for making that happen), fabulous Elizabeth from Sister Act Face Painting will be there to work her face painting magic from 10-1 (thank you MJ!). Small Scale Films and Emerald Exotics will have an amazing menagerie of reptiles and amphibians (thanks to Dan Krull and Alejandro Lozano). I’ve also heard rumors of delicious cookies…
Even if you’re already on the donor list, drop by and make a donation to Be The Match and you’ll be registered to win a Rendezvous Package at the Raphael Hotel (including an exquisite meal at Chaz) on the Plaza (thank you to Kathryn Phillips and The Raphael). And if you’re not on the donor list? What are you waiting for? Swing by tomorrow and get swabbed!
By now you’ve gathered that joining the National Bone Marrow registry is easy!
(You’re on it, right?)
But Be The Match relies on donations to raise funds to help patients who need a bone marrow or umbilical cord blood transplant find a donor and receive treatment.
Please consider visiting Team Macan It Happen‘s page and making a donation in honor of Bo.
Thank you!
kel