Macan It Happen

I have to say, since we have put the word out about Bo the response has been amazing!

In April I signed Leksi up to cheer for FCCJC. I knew it was going to be a huge commitment and we all were going to have to chip in to help.  WELL what I didn’t know is that the amazing people who are a part of this organization were going to open their hearts to help us. ONE particular amazing young lady has come up with a fundraiser for Bo, so this weekend and next weekend they are selling MACAN IT HAPPEN, SUPER BO bracelets at Heritage Park.  When people come to you and are willing to go above and beyond to help you it’s the most amazing thing in the world.  I have said this so many times, how do you thank them?  I wish everyone knew just how much we appreciate them and everything that has been done for us!

Such a small world… you know people you have known for many, many years but didn’t really know them?? I have this person in my life and last night she made my entire week by opening her heart and life to fit us in it! I appreciate it so much. It never gets easy saying thank yous because as many times a day that I tell people, I wish they knew or could feel my gratitude. The people in our neighborhood, our family from school, they are all so much help and we are so lucky.  I feel like I don’t say it enough and I wish I could name everyone but that is just not realistic so I hope when I mention people they know who I am speaking of.

On the Bo front we are still waiting to hear to see if we were approved for IVIG! Please pray we are, I am already dreading winter. It is only September 12 and we have spent 16 days in the hospital all in August and five in July. Bo and Brookie have done an okay job of adjusting to preschool, Brookie more so than Bo. The people at the Britain Center are so good with him, some days I feel sorry for them having to deal with him and his separation anxiety!! IT CAN GET UGLY!

I have also had some people ask if we are doing another Bone Marrow drive. I’m not sure. Winter is very hard on Bo and our family so we may just plan on another one closer to spring. Please encourage your family and friends to go to bethematch.org and have a kit mailed right to your house!

Don’t forget, if you’re at Heritage Park this weekend or next, and you have a Macan It Happen shirt feel free to wear it, many of the cheerleaders will be wearing theirs!! Stop by and get your Super Bo bracelets!!:)

C

So most of you know on August 11, at our grade school we had a bone marrow drive for Bo.  I got the call today that out of 162 people that are now on the National bone marrow registry NONE of you were a match for BO?!?! 🙁 BOOOOOOOOO…………. It is crazy that not one of the amazing people that came through that line are a match, this is why its so important for people to go out and become part of this, you could save someones life. Bo is in no shape to have this done right now, we just spent 15 days in the hospital for simple things, that most kids would get over in a few days NOT BO. He likes to keep us on our toes and the Nurses too. I actually think he just missed them and if its been more then 25 days well we should check in with them for a few days to see how they are!!:) They are all great and love and take care of Bo so well it makes my life much easier that’s for sure! AGAIN Please encourage your friends and family to go to www.bethematch.org and have a kit mailed right to your house!! You could change a families life.. Thanks all..

C

Bo still hasn’t pooped.

Carolyn said that they’re going to continue giving him enemas every 12 hours until Sunday night. If that doesn’t work he will likely have surgery first thing Monday morning to remove the blockage. Thoughts and prayers for Bo to have a bowel movement SOON are a good idea right about now* and please keep Bo, Carolyn, and the Macan family in your thoughts this weekend. This isn’t easy on any of them.
-kel

*Why, yes, that is one of the oddest sentences I’ve ever typed.

Here’s the link to the recent write-up about Bo in the Shawnee Dispatch!