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Lucky…

I have to say, since we have put the word out about Bo the response has been amazing!

In April I signed Leksi up to cheer for FCCJC. I knew it was going to be a huge commitment and we all were going to have to chip in to help.  WELL what I didn’t know is that the amazing people who are a part of this organization were going to open their hearts to help us. ONE particular amazing young lady has come up with a fundraiser for Bo, so this weekend and next weekend they are selling MACAN IT HAPPEN, SUPER BO bracelets at Heritage Park.  When people come to you and are willing to go above and beyond to help you it’s the most amazing thing in the world.  I have said this so many times, how do you thank them?  I wish everyone knew just how much we appreciate them and everything that has been done for us!

Such a small world… you know people you have known for many, many years but didn’t really know them?? I have this person in my life and last night she made my entire week by opening her heart and life to fit us in it! I appreciate it so much. It never gets easy saying thank yous because as many times a day that I tell people, I wish they knew or could feel my gratitude. The people in our neighborhood, our family from school, they are all so much help and we are so lucky.  I feel like I don’t say it enough and I wish I could name everyone but that is just not realistic so I hope when I mention people they know who I am speaking of.

On the Bo front we are still waiting to hear to see if we were approved for IVIG! Please pray we are, I am already dreading winter. It is only September 12 and we have spent 16 days in the hospital all in August and five in July. Bo and Brookie have done an okay job of adjusting to preschool, Brookie more so than Bo. The people at the Britain Center are so good with him, some days I feel sorry for them having to deal with him and his separation anxiety!! IT CAN GET UGLY!

I have also had some people ask if we are doing another Bone Marrow drive. I’m not sure. Winter is very hard on Bo and our family so we may just plan on another one closer to spring. Please encourage your family and friends to go to bethematch.org and have a kit mailed right to your house!

Don’t forget, if you’re at Heritage Park this weekend or next, and you have a Macan It Happen shirt feel free to wear it, many of the cheerleaders will be wearing theirs!! Stop by and get your Super Bo bracelets!!:)

C

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September 12, 2012 - 11:54 pm

Mike Rice - Oh my gosh you guys I had no idea!! I’m going to be out at Heritage Park this weekend on Saturday with my children. Belive we’re coming to see you guys!!
We’ll definitely keep you in our prayers.

September 13, 2012 - 2:24 pm

Rhonda Russell - Carolyn, is there a “meal train” or sign up situation that we can bring food/meals over to you guys? I love cooking, (I never do unless I make double for someone else.) 😉 I know winter/cold weather is coming on so soups/chilies/hearty things to throw in freezer if need be….Please just let me know, or have someone let me know if it’s already set up!
–Rhonda

Show your support for Super Bo

Leksi’s cheerleading squad, the North Indians (through FCCJC) are selling bracelets for $5 each in support of Bo and the Macan family.

One side of the bracelet says “Macan It Happen”

The other side of the bracelet says Super Bo.

They will be available for purchase Saturday, September 15 and Saturday, September 22 at Heritage Park. The girls will also be selling Super Bo pins and Macan It Happen t-shirts. More information about the booth location will be available closer to the event dates.

Pins are $12 each or 2 for $20.

Shield

Ribbon

 

T-shirts are $20 each and available in children and adult sizes.

T-shirt

Proceeds from all sales will go to the Macan family to help with Bo’s medical expenses.
If you’re unable to make it out to Heritage Park and would like to purchase a bracelet, pin, or t-shirt please click on the DONATION link on the right side of this page. Before you complete your donation, in the Special Instructions field, please be sure to add what you’re ordering. If you’re ordering a t-shirt, please include the size. If you’re ordering a pin, please say which pin (shield or ribbon) you want.

Thank you for Macan It Happen!
-kel

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BE THE MATCH……NO MATCH

So most of you know on August 11, at our grade school we had a bone marrow drive for Bo.  I got the call today that out of 162 people that are now on the National bone marrow registry NONE of you were a match for BO?!?! 🙁 BOOOOOOOOO…………. It is crazy that not one of the amazing people that came through that line are a match, this is why its so important for people to go out and become part of this, you could save someones life. Bo is in no shape to have this done right now, we just spent 15 days in the hospital for simple things, that most kids would get over in a few days NOT BO. He likes to keep us on our toes and the Nurses too. I actually think he just missed them and if its been more then 25 days well we should check in with them for a few days to see how they are!!:) They are all great and love and take care of Bo so well it makes my life much easier that’s for sure! AGAIN Please encourage your friends and family to go to www.bethematch.org and have a kit mailed right to your house!! You could change a families life.. Thanks all..

C

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September 4, 2012 - 1:55 pm

Jenifer - Hey Carolyn! I had my kit mailed to me, completed it and returned it. Will you be able to check to see if I am a match for Bo? My letter said that it would be about two months before I was officially on the register though.

More Members of Team Macan It Happen

We have been so busy that I am just getting to these! I can’t help but shed tears of happiness looking at all the amazing people who came out to support BO, and our Family!!! A HUGE THANK YOU TO MY AMAZING, WONDERFUL FRIEND, THE MOST TALENTED HEATHER MORROW OF HOCUS FOCUS! You’re truly amazing, I am proud to call you my friend!! Thanks again everyone!!

C

The Be the Match bone marrow drive was a huge success. We added over 160 people to the national bone marrow donor registry. And here are just a few new members of Team Macan It Happen.

Click on one of the photos below to scroll through the gallery.

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August 29, 2012 - 8:58 pm

ohkell - I love these SO MUCH and am so, so proud to call you guys my friends. Bo is miraculous. The momentum of the movement started by that precious boy and his fantastic family warms my heart and I will forever be grateful to be a part of it.

The Great Poop Watch of 2012: Update #2

HE HAD SOME MOVEMENT!!!

Here’s Carolyn’s exact text: Ok we have chunky poop!!!!!!!! Yay!! Surgery is postponed! They will do a slow g tube feed to see if he can tolerate it!

That’s the good great super awesome news.

But, of course, this is Bo and Bo likes to keep it interesting. Friday night his heart rate was low and the EKG results were not good. At 1 am Friday night/ Saturday morning Bo was moved to the PICU to have his heart rate monitored for an hour. His heart rate was still low but they moved him from the PICU back to his room. Carolyn’s fear, obviously, is that there is a rogue piece of the old port floating around his body. As of now they’re waiting for the cardiologist to place Bo on a heart monitor for 24-hours.

Hopefully, everything is okay. Hopefully, Bo will keep pooping and tolerate his g-tube feed. Hopefully all six Macans will be under one roof soon.

-kel

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The Great Poo Watch of 2012

Bo still hasn’t pooped.

Carolyn said that they’re going to continue giving him enemas every 12 hours until Sunday night. If that doesn’t work he will likely have surgery first thing Monday morning to remove the blockage. Thoughts and prayers for Bo to have a bowel movement SOON are a good idea right about now* and please keep Bo, Carolyn, and the Macan family in your thoughts this weekend. This isn’t easy on any of them.
-kel

*Why, yes, that is one of the oddest sentences I’ve ever typed.

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August 24, 2012 - 2:34 pm

Robert Justus - My prayers are with the family and BO.

Mini update

As most of you know, Bo is back at KU Med.

Bottom line: our tiny super hero needs to poop as his intestine is totally impacted. In spite of having five enemas, two gallons of GoLYTELY, and 112 dirty diapers at KU Med (since last Wednesday), he’s still only pooping water and very sick.

Taking a break from his hospital room for a bit.

(On the upside: his port is still working!)

Carolyn is having a hard time getting updates up due to the internet security measures at the hospital. In the meantime, please send healing thoughts and prayers to Bo.

-kel

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August 23, 2012 - 3:48 pm

Kim - Dear Carolyn, John, and family I am so very sorry to hear that Bo is back in the hospital. I’m praying that he gets to feeling better so he can get back home as soon as possible–bless his little heart. If you need anything, please call us!

August 24, 2012 - 3:45 pm

Rhonda Russell - Carolyn, please know we’re continuing to pray for you all and little Bo. I am so sorry for this family hardship. You are constantly in our thoughts. Please let me know anything I can do to help. (Johnny’s welcome over here anytime to hang out with Ryan, etc…)

F A C E B O O K
S E A R C H