Bo,is finally starting to feel better, we don’t have any results yet from his biopsy maybe tomorrow! He has gone all day with no pain meds! Yay! One step closer to getting us home! He has been such a trooper, he misses Brookie so much! I don’t like her to come up very often I worry about her catching something, not a great time of year with flu season and RSV season. We know is IJ line in his neck sucks, it’s temporary, I hope it last us for a little while I don’t want him to have to have any more procedures for a little while, 2 in 2 weeks pretty major ones is plenty! We have not scheduled our appt at NIH yet, they have to receive all of Bo stuff and let me tell you how much stuff they had to send!? His medical records are like a mile long! One thing I do want to share is how amazing I think KU MED is!!!! One of our Nurses Jen, made Bo a cake today, I will up load a pick, just because he had a rough few days and wanted to cheer him up! She works nights so needed to sleep today but instead make this cake it’s amazing and who does that? It helps so much knowing these amazing people that take care of my son are so passionate and sincere they love Bo and know how hard it is for us to be away from our family! It mY life so much easier! I appreciate them more then they will ever know!
