For the past 7 weeks Bo has, for the most part stayed, healthy! Two weeks ago that all changed. He and Brooklynn both had a cough which I thought was surely from the crap-ass weather. Cold hot, cold then hot, just pick a season- seriously! We saw the doctor two times in a week, I accessed him [his port] at home and started him on some antibiotics for a sinus infection and an ear infection. All is well? Nope, five days later *BOOM* it hit him hard. He had 104 temperature, 90% o2 stats, and a heart rate of 200, and landed us in the hospital!
We ran a ton of tests and he ended up having pneumonia. It took three antibiotics to help. He also had something new! His hemoglobin, platelets, white count and a few more were all low. Really low! His hemoglobin was 7, platelets 99 and white count was 2. Yep, when he goes, he goes big! He had an iron infusion and spiked a fever, not sure if this was bad timing for the fever or due to the infusion. He will continue to get these weekly until we figure out why his body is working in the opposite direction?!? Is this the IPEX? We don’t know! We have a lot of appointments coming up to figure this out. If all the tests come back okay, they will have to check his bone marrow to see if (or why) he isn’t producing white cells. That won’t be fun! At the end of this high dose of antibiotics he will have a bronchoscopy to see what’s going on in his lungs. Hopefully we will have some answers soon!
We have started a Super Bo Facebook Page. It’s easier to update on it when Bo is in the hospital. Find us and like it!
I have to say a few other things too. We are so blessed and lucky to have the people we have in our lives! I have no idea where we would be with out my parents, my in-laws,my sisters and my two sisters- in-law! They keep my family together. We work as a team! While we were in the hospital last week, John was out-of-town working. My three other children were taken care of by parents and in-laws!! They will never know how much I- we- appreciate them! Thank you!
To my amazing friends, thank you for the visits, the talks, my lunch shakes, everything!! I am so lucky to have amazing friends! Our community is unbelievable. Our teachers at our school keep my 2 older children safe and sound and make sure they are doing okay! They ask my kids and my niece how Bo is doing. It’s amazing all the way around! It makes my life so much easier. You guys will never know how very grateful we are!