So… Since we last spent time in the hospital! When we got scoped, Bo has been fighting a virus! I hate the word virus!!!! A virus for Bo is terrible, so his ear has been draining! I mean draining do bad I have to chance his shirt every few hours! YUCK!!!! 2 rounds of antibiotics and 2 rounds of prednisone(which prednisone makes his blood sugar super high) still draining! It was Negative for MRSA which I figured it was. If he was going to have MRSA he would have gotten it long ago! So…. They think his body is rejecting his tubes! Ugh!!! So Friday we will have them removed! The one on his left is not in a good spot so pray they can get it through the ear and not have to make a small Cut under his ear to get it !! Boooooooo!!!! Also Bo produces no antibodies for the flu or pneumonia so during flu season he gets the flu, pneumonia and synagis( rsv) vaccination every month until march! He has not had 1 yet?!?!?! Oh my hell!!! I guess lets just get through Friday, we shall see!!!! Have a great day!!
C
David Dodd - I have followed your story since late July and keep Bo in my thoughts and prayers.
I follow it because my grandson Cooper was born with this Damn IPEX too.
His story can be found here;
http://www.facebook.com/prayingforcooper
Best of luck to you, Bo, and your whole Family.