Since Bo got scoped and he now has the E in IPEX, enteropothy we are “trying” to go gluten free!!! God help us!!l lol!! Bo does eat by mouth, not just tube fed!! a lot of crackers goldfish to be exact and guess what they don’t make gluten free goldfish!! So if anyone out there has any ideas what we can use or try please let us know!! It has been a little bit if a challenge since he eats most everything he likes has gluten he likes crackers very bland food!! We are all set for Friday we check in at 11 and they will access his port to keep his sugar u def control as of now depending on his sugar and oxygen levels we may have to say the night!! Pray that isn’t the case! Why we were at the pre op appt yesterday his ear was bleeding, a lot!!! So I hope and pray that this 3 week yucky ear will soon be fixed!! Funny how we got tubes to prevent infections now because Bo can’t do anything the right way. We are having them removed!!! Ugh!!! I guess we will see what this flu season brings with no tubes!!!!
C