Bo spend last week in the hospital, he had an upper and lower Gi. OF course it was Abnormal!!! SO his lower intestines were covered in white stuff?? DR A, had never seen this before!(story of our life) so he did many many biopsies and it came back to be ENTEROPOTHY. Yep The E in IPEX had taken affect in my poor little man! SO we will wait and hopefully hear today what our plan of action is. Their is a 99% chance we will go Gluten free, Glucose free plus he is diabetic did I mention He is diabetic!! UGH!!!! Fun fun, but what ever helps I am down with. In a few cases they have seen this early but most from what research they can find this E in IPEX starts later in life not at the age of 2. Of course we don’t really know because none of the Dr here have seen it before! So I don’t have much just that!
Please keep the Peters family in your prayers today, today is Transplant day for Clara and her amazing sister!!! What an amazing blessing!!
Also TEAM KRIS~ this is truly amazing to ME also, Kris Minor couldn’t find a BMT match so they did cord blood transplpant on Aug 11… I am SO very happy to say Kris is going home today, with amazing results she is a true fighter and her family is simply amazing! Thanks everyone for your prayers for these amazing families!!
Have a great day!