I never in a million years thought I would be posting this and airing it to the world, but here I go!!
The last 8 days have been crazy for us. We are planning our big trip To Cincinnati Children’s Hospital on July 18. Trying to get everything ready has been a little stressful! All of Bo’s meds have to be refrigerated so I had to order special coolers for his growth hormone and his insulin. We also went “public” with our story. It may not seem like it’s a big deal but, oh boy is it. Many people had no idea Bo is sick let alone needs a bone marrow transplant. The support we have received has been amazing, and very overwhelming- in a good way.
This Sunday my amazing dear friend Heather Morrow is doing a fundraiser for us and I am 100% positive I will cry my eyes out most of the day!
My amazing sister-in-laws have made these t-shirts and they are selling like crazy!
It’s hard for me. How can you say thank you in a way that let people know just how very thankful you are?? It’s so crazy!
On a serious note!!! Last week we did find out that Leksi, Johnny, and Brooklynn were NOT a match. That being said, it sucks and my heart broke in a million pieces when Cincinnati called to tell us. BUT, in a little bitty place deep down, I was a little relived. If any of them were a match then they would have to be put through a procedure and it was scary for us to think another one of our kids would be going through pain. As of yesterday the people in Cincinnati are officially searching the National Bone Marrow bank!!! I never ever thought those words would come out of my mouth! So we wait and to hear what is next, not sure if we will hear anything until our appointment on the 18!
Putting our story or “dirty laundry” out in the world has actually been pretty good, I am way more at ease with it now. I can’t thank everyone enough for all of your support and prayers. We are so blessed!