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It’s official

I never in a million years thought I would be posting this and airing it to the world, but here I go!!

The last 8 days have been crazy for us.  We are planning our big trip To Cincinnati Children’s Hospital on July 18. Trying to get everything ready has been a little stressful! All of Bo’s meds have to be refrigerated so I had to order special coolers for his growth hormone and his insulin.  We also went “public” with our story.  It may not seem like it’s a big deal but, oh boy is it.  Many people had no idea Bo is sick let alone needs a bone marrow transplant.  The support we have received has been amazing, and very overwhelming- in a good way.

This Sunday my amazing dear friend Heather Morrow is doing a fundraiser for us and I am 100% positive I will cry my eyes out most of the day!

My amazing sister-in-laws have made these t-shirts and they are selling like crazy!

It’s hard for me. How can you say thank you in a way that let people know just how very thankful you are?? It’s so crazy!

On a serious note!!! Last week we did find out that Leksi, Johnny, and Brooklynn were NOT a match. That being said, it sucks and my heart broke in a million pieces when Cincinnati called to tell us. BUT, in a little bitty place deep down, I was a little relived. If any of them were a match then they would have to be put through a procedure and it was scary for us to think another one of our kids would be going through pain. As of yesterday the people in Cincinnati are officially searching the National Bone Marrow bank!!! I never ever thought those words would come out of my mouth! So we wait and to hear what is next, not sure if we will hear anything until our appointment on the 18!

Putting our story or  “dirty laundry” out in the world has actually been pretty good, I am way more at ease with it now. I can’t thank everyone enough for all of your support and prayers. We are so blessed!

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July 7, 2012 - 5:41 am

carolyn zeller - I really hope you realize that the struggles you have faced with Bo would never be thought of as dirty laundry. The thought that letting people know about your life situation would be like saying “hi… Please feel sorry for me because of what I have to deal with”. I know that feeling but I also know that people love to help, and WANT to support you. We have been blessed by the heavens with our “special” boys. We get to experience a love that many parents are afraid to ever have to face. But we also realize that its that love that keeps us going and fighting… And living. Keep on sharing honey, we all care. Love you girl!!!

July 7, 2012 - 12:36 pm

Ridgway - Prayers go up…blessings come down! Sending positive energy, love & hope to you! (Ridgways)

July 7, 2012 - 2:10 pm

ohkell - Next up: convincing as many people as humanly possible to get on the National Registry. We can make that happen. We love you guys, we believe in Bo, and I continue to be in awe of you, sweet friend.

July 9, 2012 - 2:30 am

Amanda McCoy - Thanks for letting us share in todays event!! We are all so grateful to have been a little part of this amazing day!

July 13, 2012 - 1:03 am

Elaine Miner - As many of you know, our family is fighting this same fight. Our prayers go out to you because we truly know how hard it is. Keep up the good fight because your baby is counting on you. It is hard to go public but people do care and few people know how great the need truly is. The 10,000 people waiting for a match are real people with real families. You and your family are truly in our prayers.

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