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Appointment update

Carolyn emailed last night with an update from Bo’s appointment yesterday.

The doctor they saw does not feel that, at this point, Bo is a candidate for a bone marrow transplant. Right now the doctor feels that Bo’s body can’t handle the transplant and that it’s not worth the risk. They will reassess the situation in 5-10 months but, even then, the doctor isn’t certain that a bone marrow transplant is the way to go. His immune system would potentially be the same after the transplant, he would still have diabetes, growth hormone deficiencies, and thyroid problems. The doctor also said there is a 20% mortality rate.

This news is frustrating, scary and, Carolyn said, some of it was really hard to hear. However, they’re glad the doctor was honest, cautious, and didn’t push for the transplant.

Next up for Bo is Immuniglobulian therapy at KU Med every four weeks until March to try to improve his levels. Once they’re back from Cincinnati, Carolyn will share more details about that process.

On a lighter note, Carolyn asked me to share with you that we will be hosting a Bone Marrow Donor Drive at Roesland Elementary on Saturday, August 11 from 9 am- 2 pm. I have a few plans to finalize BUT! I can tell you that it’s going to be another fun, amazing day with Team Macan It Happen. Put it on your calendar and come get swabbed! Our eyes have been opened to a tremendous need and though Bo may not be eligible for a bone marrow transplant, there are so many people out there who are and desperately need a donor. Details about the drive will be posted on the blog soon!


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